Magazine and Scottish News
Our beliefs, our record so far, and our aims
A history of our movement
Living wills (advance medical directives/statements)
Bibliography - some recommended reading
Books available from The Scottish Voluntary Euthanasia Society
Excerpts from our Journal
Older excerpts from our Journal (courtesy of DeathNET)
In March 1993 Anthony Bland had lain in persistent vegetative state for three years before a Court Order allowed his degradation and indignity to come to a merciful close. The judges said that if he had made a living will expressing his future wishes he could have been allowed to die in peace earlier. The Scottish Voluntary Euthanasia Society is at the forefront of living will research in the UK. Your subscription will help to make a peaceful death through a living will a reality for anyone who desires it.
In 1992 Dr Cox openly defied the law and assented to 70 year old Mrs Boyes' persistent request for voluntary active euthanasia. Mrs Boyes' was so ill that she "screamed like a dog" if anyone touched her. Conventional medicine did not relieve her agony. In her last days, when she repeatedly requested to die, Dr Cox finally gave her an injection of potassium chloride, bestowing on her the boon of a peaceful death so many of us feel we are entitled to. Dr Cox, although given a suspended sentence, was hauled through the courts like a common criminal. We believe good doctors acting in all conscience like Dr Cox, should be lauded, not vilified, and should have the benefit of legally approved codes of conduct that embody consistent safeguards against abuse. Together we should ensure that medicine and the law serve the patient and the citizen once more. Together, we can stand and be counted. And, from pooled resources, each small contribution will contribute to the powerful tidal wave that the Scottish Voluntary Euthanasia Society can use to bring this about.
Sue Rodriguez, a mother in her early thirties, died slowly of Lou Gehrig's disease. She lived for several years with the knowledge that her muscles would, one by one, waste away until the day came when, fully conscious, she would choke to death. She begged the Courts to reassure her that a doctor would be allowed to assist her in choosing the moment of death. They refused. She lived on in terror, helped eventually by a doctor who, in February 1994, covertly broke the law to help her die in peace. A law on assisted suicide with rigorous safeguards could have saved her the nightmare during those months before her death, given her the confidence to carry on - with the reassurance that when it got too bad she could rely on a compassionate doctor to follow her wishes at the end. The Scottish Voluntary Euthanasia Society is pledged to support research for drafting the most thorough, yet feasible, assisted suicide Bill yet presented to Parliament. Your support will make it happen.
"Re C" A 68 year old prisoner of Jamaican origin had been diagnosed as suffering from chronic paranoid schizophrenia and was treated with drugs and electro-convulsive therapy. In September 1993 the prison doctors found he had gangrene in his right leg. They felt his chance of survival with conventional treatment was no better than 15%, and so recommended that his leg be amputated below the knee. The prisoner refused amputation and received conventional treatment only. There was a likelihood, however, that gangrene would recur. The prisoner stated he would rather die on two legs than live on one, and his solicitor asked the hospital to promise not to amputate in any circumstances without the prisoner's consent. They refused, and he sought a court injunction to uphold his wishes. The court considered expert testimony in the case (known as Re C) and found that, although the prisoner was suffering from schizophrenia, there was nothing to suggest that he did not understand the nature, purpose and effects of treatment; he had understood, and, with a full knowledge that death might result from refusing amputation, had clearly made his choice. The court upheld the prisoner's right to make an advance refusal of treatment and granted an injunction. The case paved the way for acceptance of advance refusals of medical treatments and so for living wills. Completion of a Scottish Voluntary Euthanasia Society living will document could save distressing and drawn-out court proceedings if ever you were incapacitated.
Karen Ann Quinlan collapsed on April 15th, 1975. She was twenty-one years old. Within hours, she entered a coma from which she could never recover. Her parents, staunch Roman Catholics, knew their daughter would not want to be kept alive by extraordinary means. A year later, as Karen lay in a "persistent vegetative state," the courts finally allowed her treatment to be stopped; but artificial feeding was continued and she was maintained as a living corpse until June 1985, when she eventually died of pneumonia. Her case spurred thousands of letters of sympathy and fuelled the "right to die" movement. How many people need to die degrading deaths before society learns a little humanity? The Scottish Voluntary Euthanasia Society is committed to research and teaching in these difficult areas. Help us to help you, and all those who would seek die with dignity and give you their heartfelt thanks.
Ramon Sanpedro is currently seeking, through the courts, the assistance
of a doctor to help him die with dignity. He was paralysed in Spain as a
result of a swimming accident during his youth. He describes himself as "a
head attached to a corpse." He writes:
"Why die? Because every journey has its departure time and only the traveller has the privilege and the right to choose the last day to get out. Why to die? Because at times the journey of no return is the best path that reason can show us out of love and respect for life, so that life may havea dignified death."
Ramon Sanpedro makes no suggestion as to what the wishes of others in a similar physical condition might be. In fact, some people who are so paralysed take enjoyment in life and want to go on living. Their choice should be respected and they should be given every support. But Ramon Sanpedro has made his choice and his choice should also be respected. We should seek to ensure that the rights of the individual are always respected without allowing others to feel endangered or pressurised. The Scottish Voluntary Euthanasia Society provides international technical and informational support. With your help, we can make the world a better place.
Nancy Cruzan lost control of her car one day in January 1983 in Missouri. When the paramedics arrived, they were able to restore her breathing and heartbeat and she was transported, unconscious, to hospital. She continued to be fed through a surgically- implanted gastrostomy tube. After several years, a court found that, although her respiration and circulation continued unaided, she was oblivious to her surroundings except for reflexive responses to sound and perhaps painful stimuli; her brain had degenerated, irreversibly; she was a spastic quadriplegic; she suffered contraction of her four extremities, with irreversible muscle and tendon damage; and had no cognitive or reflex ability to swallow food or water or to maintain her essential daily needs nor would she ever recover such an ability. She lay in persistent vegetative state even though she had told her housemate that, if sick or injured, she would not wish to continue her life unless she could live "at least halfway normal." This was the first time the U.S. Supreme Court had been faced with what we call the "right to die." They said that Missouri had "arrogated to itself" the power to define life, and Nancy Cruzan's life and liberty consequently put into disquieting conflict. She had not made a living will, and the court case paved the way for a uniform, national Patient Self- Determination Act that regulated living wills and made them more widely available. The Scottish Voluntary Euthanasia Society is campaigning for uniform UK reform to make living wills more widely available. Your help can make it a reality.
57 year old Georgette Malette, in the early afternoon of June 30th, 1979, was rushed, unconscious, by ambulance, to hospital. The car in which she was a passenger, driven by her husband, had collided with a truck. Her husband had been killed; she had suffered serious injuries. She was a Jehovah's Witness and carried a card stating her firm conviction that no blood or blood products should be administered to her under any circumstances. The doctor treating her ignored the card and gave her a blood transfusion which he decided was medically indicated. In June 1980 Mrs Malette brought charges against Dr Shulman. The judge found that Mrs Malette had suffered emotionally and mentally and ordered substantial costs to be paid. It made no difference that the medical team didn't agree with her beliefs. Her advance refusal of treatment was unambiguous. Unfortunately, living wills tend to be far less clear cut, dealing with a wide range of circumstances in which interpretation is sometimes necessary. The Scottish Voluntary Euthanasia Society is at the forefront of research into living wills and other ways of having your wishes respected at the end of life. Public support will help us to help make dying more dignified for all those who want to retain some control and self-respect in their dying phase.
When her case came to trial, Claire Conroy was unable to move from a semi-fetal position. She was severely demented, had heart disease, hypertension and diabetes and her left leg was gangrenous to the knee; she had sores, couldn't speak, had only a limited ability to swallow, and had eye problems; she had a urinary catheter in place and was unable to control her bowels. She was able to moan and scratch, and occasionally smile when someone combed her hair. Claire Conroy eventually died before the courts were able to decide what to do. She was not a candidate for voluntary euthanasia. She had not made a living will. But her case posed very worrying dilemmas about end of life decisions. Pushing difficult deaths to one side will not make them go away or make them any easier. The Scottish Voluntary Euthanasia Society encourages open discussion of the problems increasingly facing us in society. We care, and we listen with an open mind. We ask you to work with us so that every person can die with dignity in the way that he or she would choose.
Difficult medical decisions may need to be taken when the patient is unable to speak for him or herself. With little or no possibility of recovery, would you want measures that might only prolong the dying process - possibly to a more distressing conclusion than might be achieved without active treatment? The advance instructions of the patient for such eventualities are invaluable, and may be formalised into a written document or "living will."
Living wills are perfectly lawful, and encouraged by parliament, the British Medical Association and the Law Commission; they have little or nothing to do with active voluntary euthanasia, which is at present illegal; but the voluntary euthanasia societies, from a humanitarian interest in the dying process, are involved with the promulgation of living wills, in addition to campaigning for reform on active voluntary euthanasia.
see: living will packs For further reading on living wills, see under the A-Z Index section on living wills.
In a country where voluntary euthanasia and assisted suicide are unregulated and illegal, the only real option for some people can be, sadly, to commit suicide. The English language is short on words to distinguish between different types of suicide. The word "suicide" can be used to cover the irrational self-killing of a lonely teenager who is suffering temporary emotional depression. But take the death of a 93 year old man suffering unrelievable indignities from a terminal illness who calmly decides to go out on his own terms, at his own time and choosing: suicide hardly seems to describe it, and so the term "self-deliverance" has gradually come into popular usage.
SO IF PEOPLE CAN CHOOSE SELF-DELIVERANCE, SURELY THERE'S NO NEED FOR VOLUNTARY EUTHANASIA? Unfortunately it isn't quite that simple. There are many ways that people die, but very few completely reliable ways. In the case of a suicidally-depressed teenager, it is perhaps a good thing that a lot of attempts fail; but failure in the case of a rational attempt - to leave an existence of unbearable suffering - only adds trauma and a sense of inability to the unrelievable problems which motivated the attempt. The horrors of failed rational suicides have been well documented by writers such as Russel Ogden and Lonny Shavelson.
BUT IF YOU MAKE THE INFORMATION AVAILABLE TO THE PEOPLE WHO NEED IT, WHAT IF IT GETS INTO THE WRONG HANDS? Someone who is determined to find ways to end his or her own life will probably unearth all the known information from newspapers, crime stories and medical libraries. Depressed people may not even bother researching the ways - they may choose violent methods such as crashing a motor-car or jumping off a cliff (though even these methods are not completely foolproof). But for rational self-deliverance, such means are abhorrent - a life of dignity and self-control reflects consideration for other people and the memories one leaves behind. Drugs or car exhausts are more often the method of choice. There has been for a number of years a best-selling book on methods of self- deliverance called "Final Exit." The book is easily purchased from almost any bookstore. Although the success of the book has drawn valuable public attention to the desperate need for such information, the Scottish Voluntary Euthanasia Society does not believe that such open dissemination of this type of literature is desirable. We seek to discourage irrational suicide that is a result of transient emotional depression; but, especially since physician-assisted suicide is not an option in this country, we believe that competent adults should still have some say in timing their death if they so wish. For the vast majority, knowing that one can choose the door marked "Exit" if things get too bad is an immense comfort and reassurance. That reassurance, however, is nothing but false hope if the information is faulty.
THE SCOTTISH VOLUNTARY EUTHANASIA SOCIETY - PIONEERS IN SELF-DELIVERANCE In July 1979, Exit - then the Voluntary Euthanasia Society (Great Britain) decided that a book on how to end one's own life would be a good idea. After announcing their intention, membership rose at a rate of 1,000 a month from an initial 2,000. The following year however, concerned over conflicting legal opinions, they decided not to publish. The Scottish Branch voted to become independent in order to publish and so, in 1980, the Scottish Voluntary Euthanasia Society (Scottish Exit) became the first right to die society in the world to publish such a booklet for its members. It was called "How to Die With Dignity." The booklet was based on the opinions of a single doctor and contained many errors, as have subsequent books, and so eventually in 1993 an International Drugs Consensus Working Party met at the Society's headquarters to finalise a scientifically researched volume called "Departing Drugs." The academic foundations were published in a later work called "Beyond Final Exit", and the legality of publication examined by the Scottish Regius Professor of Law, Joseph Thomson.
The booklet was compiled and distributed as a non-profit venture and, unlike Final Exit, available not from bookshops but only by formal application to the Society. Before the book was issued, one of the rules was that any purchaser must have been a member of a right to die society for at least three months, so discouraging irresponsible or ill-considered use of its contents. The Society also reserves the right to refuse to sell it - something an assistant in a bookshop is unable to do with the "popular" guides. We take our responsibilities very seriously. Most members who purchase the booklet are in excellent health and are simply wanting a sort of insurance for their dying years, months or days. But if an individual seems suicidal we always offer counselling or referral to a support group.
DO PEOPLE USE SELF-DELIVERANCE IN THE NETHERLANDS? When a person has made a successful request for voluntary euthanasia, doctors often favour allowing the patient to take the final, lethal medicine him or herself, as a final act of will. Departing Drugs is currently being translated into Dutch (as it has been translated into Spanish, German and French). However, only a few patients are physically able to do so by the time they want their final release. For those that are, there is the added assurance that the doctor will take over if anything goes wrong. Equally important, there is always the presence of a reassuring hand, whether of the doctor, friends or relatives - all of whom may be present.
It is a sad reflection on the society in which we live that people sometimes need to die alone and in secret. A humane law for voluntary euthanasia or physician-assisted suicide would reduce the pressure on "self-deliverance." Until then, people are dying, often badly, and they deserve what help and support we can give them.
Applicants must be over 21 yrs. (We also reserve the right to refuse purchase.)
Departing Drugs is the first international syllabus of drugs for self-deliverance, compiled by an international team using thousands of pages of collated data and the latest clinical evidence from the Netherlands. Scrutinized, by experts in several fields, Departing Drugs presents methods with illustrations and simple, thorough explanations. The book explodes myths about previously accepted self-deliverance drugs and sheds new light on readily available drugs. It includes a country-by-country index providing brand names for over twenty countries, and an extensive glossary. Proof of three months' membership of a right-to-die society is required. Non-profit venture.
Price including postage:
·8GBP UK; ·10GBP overseas
British currency only. Order form
Academic articles on methods of self-deliverance (rational suicide). Includes
a history of books on self-deliverance and one of the most comprehensively
referenced articles on fasting currently available. The title is based on
the series of articles in the Canadian journal "Last Rights" in which some
of the chapters initially appeared.
Price including postage:
·8GBP UK; ·10GBP overseas
British currency only. Order form
Currently out of print.
Some features of the main living will document in this pack:
Price including postage:
·30 GBP (included free with membership subscription to Exit Newsletter journal.)
British currency only. Overseas (outside UK): £50.
Director: Chris Docker, M.Phil (Law & Ethics in Medicine)
17 Hart Street, Edinburgh EH1 3RN, Scotland, United Kingdom
Tel (International) +44-131-556-4404. Inland: 0131-556-4404
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The Dying in Dignity Mensa Special Interest Group
Open to all Mensans anywhere in the world. Distributes the Dying In Dignity Mensa Sig News Journal. Furthers "pro-life" and "pro-choice" views. Mensa as such has no opinions.